(no subject)

[krowface]

Really the first thing I need to talk about is my daughter. Not just because she's the most important thing going on in my life right now, but also I suspect she's the reason some of you are part of this mailing. In summary: "It was scary, but she's okay now," however I'm going to start from the beginning, just so everyone knows where we came from here.

Alexandria Rose was born December 27th, 2011. Delivered into this world via c-section the year Philly had no winter, she arrived with ten and ten, with a shock of blonde hair that can't stay calm. She was also diagnosed with Tricuspid atresia, a rare type of heart disease that is present at birth, in which the tricuspid heart valve is missing or abnormally developed. The defect blocks blood flow from the right atrium to the right ventricle.

Normally this is fixed in children with two surgeries, one that happens pretty early, and another that happens a few years later. However, as anything that is going to be my goddamned loin fruit, there are going to be difficulties. Because life is never easy for those that dare come near me.

The rest of the story can be found here. If you don't have access, e-mail me and I'll let you in.

Comments

[n3m3sis42.livejournal.com]

Thank you for sharing this. I want to have something profound to say, but I don't. There's no way for me to understand what you went through - the first few weeks are so damned hard anyway, and seeing your baby sick with something as small as a cold is heartbreaking. I still can't even imagine. I'm glad the story has a happy ending, though.

[barrelofrain.livejournal.com]

<3

[thehobbit.livejournal.com]

I want to see non NG tub photos because I'm the twat that says OH YOU GAVE ME AN HONEST, OPEN STORY?! GIVE MORE.

I'm the worst. Honestly. Though she's the most beautiful thing on earth because man I love your kid.

[krowface.livejournal.com]

I've taken some pics of her recently without them. I could show them to you, maybe...

[thehobbit.livejournal.com]

!!!!!!!!!

True facts: I scoured both your's and Kate's FBs for photos because I'm a weirdo who goes into hermit mode and instead of being a normal, direct person I just creeped to find non NG tube photos. I looked at the pictures of Seamus without his NG tube the other day. That was the best day. I'm so glad things are on the up and up. Well, by up and up I mean here's to stupid kid bullshit now. We're fighting ear infections and yeast infections. SO MUCH FUN.

[mistressdeath.livejournal.com]

I havent been on LJ much and missed that you had a baby! Congratulations--I hope everything works out OK.

bookmarked for later...

[paradoxymoron.livejournal.com]

She'll have a hell of a story to tell in first grade about how she survived a chestburster based on that scar.